The special one Part 1

As I mentioned yesterday this trip to the states was really special. One of the things that I really wanted to happen (and have wanted for years) happened this trip. It was nothing like I expected, it was way better. For years I have been working with Tim on a lot of stuff all the while not knowing what was going on exactly. When I talked to dr.'s they said "he's just a little slower with some things. Not all kids walk/talk/etc at the same time." Then later in life they said "oh, he's just spoiled. You need to be more firm with him." But in my heart I knew there was something more. I figured out on my own that he has sensory processing disorder. Once I read about it I knew to an extent that Timothy has difficulty with many forms of sensory input. So I kept doing everything I could to help him on my own, praying for him and asking God to help us do the best we could. Last year he started doing some things that made me think he might be on the autism spectrum. But, honestly? I didn't really want to admit that. It's so common now I didn't want it to seem like I was jumping on a bandwagon. Plus I didn't want to label my kid for life.  Sensory issues can be worked through. Autism? That's a lifelong thing. 

Timothy and I just chillin' on the floor as one does

Reading pastors book

He wanted his face painted "like a lego mini figure" this is his mini figure pose

As we wrapped up the school year last year I had become so overwhelmed that we were talking about sending the boys to school instead of homeschooling.  All I could think about was "what will they do with Timothy. He just barely manages Sunday School and that is less than an hour. School is hours and they don't have special education here, plus nobody really has listened to my calls for help. What if they don't believe me and treat him badly because they think he is spoiled?" I decided we needed to get a diagnosis. Whatever that meant. I had read an article about sensory processing disorder, adhd and autism and at the end it had a link that said "if you need help getting your child diagnosed find a specialist here" I followed the link and found a list of people in Houston and 2 people in Peru. I made a few phone calls and found someone that was extremely flexible and said to give her 2 weeks notice before we went to the states and she would work us in. I started to relax, the only thing bugging me was the cost. An initial examination would be $500 and any follow ups would be $350. That may not sound like much to you but that's a pretty big chunk of our monthly budget and we didn't have any extra money to set aside. Jose's aunt had previously offered to help us pay for speech therapy because if anything that is what people recognize as an issue and she wanted to help. We talked to her about the specialist and she said she would help us. Everything was coming together. We scheduled our trip and worked out all the details but there was something keeping me from contacting the specialist. I didn't know why but I just didn't feel peace about it. Jose had the same feeling so we held off. Our first week in Houston we had the mens conference then spent a few days with family and our pastors. I really poured my heart out to our pastors. I told them all the things I had been holding back about Timothy. Immediately our Pastor had 2 names of people he wanted us to talk to. He talked to both people and scheduled a meeting with one of them. The first person was a mother of a 7 year old boy with autism. She met Timothy and said she saw a lot of similarity between our boys. We talked for about 30 minutes but she just shared her journey with us and gave us a lot of good information. I cried all the way through it. I kept apologizing and she just laughed and said she knew exactly what I was feeling. At the end we hugged and I felt a little more confident about our next step.

(Come back tomorrow for part 2)