The Special One: Part 2

This is part 2 to read part 1 click here

As I mentioned yesterday Our Pastor had 2 people for us to talk to. The second person our pastor told us to talk to was someone from our home church named Tracey. She had the exact same specialty as the woman I had been holding back on calling. The funny thing is my friend had been telling me for over a year I needed to meet Tracey but it just never happened in my short trips to the states. Aside from that we had dinner with a couple from our home church on Saturday night. We didn't really know them but they invited us over so we went :) as we were talking we shared about Timothy and that we were spending a little extra time to get him some help. The wife told us that she had been a special ed teacher for years (and only recently left that to become a vice principal) she told us we should talk to this woman from church named Tracey. I told her you are the 3rd person to say that. Can you help me find her at church? I don't know what she looks like but I want to meet her! She promised to call her and make sure we connected.

The next day at church our pastor instructed everyone to find a partner and pray for each other. Jose and I were about to pray for each other when this woman walked up to us and said "Hi, I'm Tracey. I hear we need to talk to each other." We prayed together and she gave me a sheet of paper with her phone number and said "Tomorrow is my day off. Lets get together and talk about Timothy"  By the time I got to restaurant where we ate lunch I had 2 Facebook notifications. A friend request and a message both from Tracey. She had cleared it with the clinic she works at to do all our work with her at the clinic pro-bono. She wanted us to meet her there instead so we could go ahead and get started. We made plans to be there first thing the next morning. We went to see my friend who had suggested I talk to Tracey a year before and she mentioned that she had emailed Tracey about talking to me. Tracey responded "lol, you are the third person who has contacted me about that. I'm getting together with them Tomorrow" It was so clear that God was putting everything together in the background I was on a happy high.

Monday morning we went to the clinic where Tracey worked. I sat in the waiting room and nervously looked at all the other parents and children waiting. I had no idea what to expect and Timothy was having a rough day so far. It usually takes a little over a week for him to hit his stride when we travel to the states and that was still a few days away. Tracey came out with a big smile hugged us and met Timothy for the first time. We went back into a room and watched her play with Timothy and ask him questions. It was so hard to just watch and not help him so many times when she asked him to do something and he didn't understand or couldn't do it. I kept telling myself "just watch, let him do it, she needs to see Timothy without help" He had difficulty with so many things. At the end of the evaluation she said we needed to get a hearing/speech evaluation as well. She wasn't sure he was understanding everything she said to him which effects the test results a lot. That evaluation would be someone else so we would need to see if/when she could fit us in and that would be kind of expensive (but still less than the other specialist we had talked to initially) She managed to get us an appointment that day. Jose called his aunt and explained the situation and she completely covered the cost. At the end of the day Tracey said she wanted to work with Timothy every day while we were there so she could help us come up with a home therapy plan. Every time I received a text or message from Tracey I would find myself crying and thanking God for his goodness.    

Timothy trying to make his hands and feet work together to grab the frogs and knock something down with them

swinging one of the things Timothy could do all day long

Spinning or earthquake on this board was another favorite 

Timothy has many challenges but he has a lot going for him too. His challenges have names like Sensory Processing Disorder, ADHD, and Aspergers/High Functioning Autism. But Tracey said something to us that blessed me so much and has been brought to my mind over and over. All of those things are names and every name must bow at the feet of Jesus. I learned about my son this past month and a lot of it was painful but some of it was sweet and inspiring. Timothy is very cognitively bright and super smart. So when you ask him to do something he can't like stand on one foot he will start clowning and fall in a cartoonish way. He has a million little coping mechanisms for a lot of the problem areas he faces. He figured those out himself. As I've read about kids like him they need those things and usually need help finding them but he's pretty great at problem solving in some areas. 

I'm only a couple weeks in from really knowing what we are dealing with. I'm still processing and I randomly think of things that make me sad or worry. But I was/am so blessed to have had this experience. So many people have stepped up and been so supportive of all of us. I never wanted Timothy to be branded as "special needs" but now I see it differently. He really is so special and no name or label being given or not given changes that.

The special one Part 1

As I mentioned yesterday this trip to the states was really special. One of the things that I really wanted to happen (and have wanted for years) happened this trip. It was nothing like I expected, it was way better. For years I have been working with Tim on a lot of stuff all the while not knowing what was going on exactly. When I talked to dr.'s they said "he's just a little slower with some things. Not all kids walk/talk/etc at the same time." Then later in life they said "oh, he's just spoiled. You need to be more firm with him." But in my heart I knew there was something more. I figured out on my own that he has sensory processing disorder. Once I read about it I knew to an extent that Timothy has difficulty with many forms of sensory input. So I kept doing everything I could to help him on my own, praying for him and asking God to help us do the best we could. Last year he started doing some things that made me think he might be on the autism spectrum. But, honestly? I didn't really want to admit that. It's so common now I didn't want it to seem like I was jumping on a bandwagon. Plus I didn't want to label my kid for life.  Sensory issues can be worked through. Autism? That's a lifelong thing. 

Timothy and I just chillin' on the floor as one does

Reading pastors book

He wanted his face painted "like a lego mini figure" this is his mini figure pose

As we wrapped up the school year last year I had become so overwhelmed that we were talking about sending the boys to school instead of homeschooling.  All I could think about was "what will they do with Timothy. He just barely manages Sunday School and that is less than an hour. School is hours and they don't have special education here, plus nobody really has listened to my calls for help. What if they don't believe me and treat him badly because they think he is spoiled?" I decided we needed to get a diagnosis. Whatever that meant. I had read an article about sensory processing disorder, adhd and autism and at the end it had a link that said "if you need help getting your child diagnosed find a specialist here" I followed the link and found a list of people in Houston and 2 people in Peru. I made a few phone calls and found someone that was extremely flexible and said to give her 2 weeks notice before we went to the states and she would work us in. I started to relax, the only thing bugging me was the cost. An initial examination would be $500 and any follow ups would be $350. That may not sound like much to you but that's a pretty big chunk of our monthly budget and we didn't have any extra money to set aside. Jose's aunt had previously offered to help us pay for speech therapy because if anything that is what people recognize as an issue and she wanted to help. We talked to her about the specialist and she said she would help us. Everything was coming together. We scheduled our trip and worked out all the details but there was something keeping me from contacting the specialist. I didn't know why but I just didn't feel peace about it. Jose had the same feeling so we held off. Our first week in Houston we had the mens conference then spent a few days with family and our pastors. I really poured my heart out to our pastors. I told them all the things I had been holding back about Timothy. Immediately our Pastor had 2 names of people he wanted us to talk to. He talked to both people and scheduled a meeting with one of them. The first person was a mother of a 7 year old boy with autism. She met Timothy and said she saw a lot of similarity between our boys. We talked for about 30 minutes but she just shared her journey with us and gave us a lot of good information. I cried all the way through it. I kept apologizing and she just laughed and said she knew exactly what I was feeling. At the end we hugged and I felt a little more confident about our next step.

(Come back tomorrow for part 2)

Home sweet home!

Traveling to the states is a lot like pregnancy for some women. (not me because I'm not a fan of pregnancy as a rule. The results are what I like) I hope for it. When I find out we will do it I get excited and can't wait for it. I plan out what I'm going to pack at least a month ahead of time. I love being there and enjoy everything that happens, it goes by faster than I think. The last few days are really hard because I didn't get everything done that I wanted and I start to panic and swear I will never do it again. Then when it's over I can't wait until the next time we go.

This trip was no exception. We really enjoyed our time and made some new connections that we are really excited about. Got to spend some time with our family (both natural and spiritual) and soak in the love. We missed several people this time because of time constraints but we hope to catch up with those people next time. (see? I haven't been home for 24 hours and already I'm thinking about the next time. haha)  

This week I will be sharing something very special that happened while we were there. I'm still writing it but I wanted to post this to keep myself accountable. Tomorrow (Friday) I will post the first part of the story. But for now we are home, we are safe and our hearts are full from all the love we received in the states. As Paul told the Philippians I thank my God every time I remember you. In all my prayers for all of you, I always pray with joy because of your partnership in the gospel from the first day until now, (Philippians 1:3-5) 

Now it's time to join this girl and crash!